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Building a Global Ecosystem of Care and Empowerment
Our Mission: • Everything is in our name: Lynk Up World.
At Lynk Up World (LUW), everything we do embodies our name.
We link people and resources to create a comprehensive support system for the rare disease community. With a network driven by dedicated volunteers around the world, LUW fosters opportunities to give back, inspire hope, and support families as they navigate the complex rare disease journey.
Volunteer Network
Volunteer Network
The Heart of LUW
Our global volunteer network is the cornerstone of LUW’s ecosystem. These committed individuals contribute time, expertise, and compassion to support families, develop resources, and drive impactful change.
Partners in Impact
Partners in Impact
Collaboration for Greater Reach
Through strategic partnerships with medical, corporate, and nonprofit leaders, LUW amplifies its reach and impact. Together, we build bridges between industries and communities to enhance care, foster innovation, and create lasting change.
Why 501(c)(3) Status Matters
Why 501(c)(3) Status Matters
Commitment to Transparency and Public Benefit
Operating as a 501(c)(3) nonprofit underscores LUW’s dedication to serving families affected by rare diseases. This status ensures our mission remains community-focused and driven by impact over profit.
Our nonprofit status is a testament to our pledge to create meaningful change that endures.
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